Wednesday, April 28th
Avery has continued to decline over the past week. Her right eye is now almost completely shut, and her pupil shows little to no reaction to light. She is losing more strength in her legs and needs a little extra assistance to get up. She also began having intermittent vomiting again on Monday.
Back in the Fall when Avery was critical(she ended up on a vent with an EVD), Shon and I both agreed that we never wanted to see her suffer. We never wanted our selfish desires to keep her here on Earth to overshadow what was in Avery's best interest. And because of that, we have decided to discontinue any further treatment and spend her remaining time at home. With the help of ComfortCare(Hospice), we plan to give her the best life possible with whatever time God has planned for her left on this Earth.
Thank you all for the love and care and prayers you have shared with us through Avery's journey! They mean more to us than you will ever know.
We respectfully ask that you grant us our privacy during this difficult time. We may be slow or unresponsive at times to texts and calls. We also ask that you don't send any items to our home. We have everything we need at this time.

Please continue to pray for:
- No pain for Avery
- Good memories made and fun to be had in the coming days/weeks
- Peace and comfort for all that love her
Words can’t express how deeply sorry I am that you and your family are going through any of this. I have followed your journey since the beginning your Strength Amazes me! Prayers for All of you!
Words can't express how I feel. My heart and prayers are with all of you.
Praying for your family and sweet Avery !!!
The Lord is close to the brokenhearted. He is surely there with you. I pray for sweet, beautiful Avery every day, as well as for for you, her Dad and sisters. May God's plan for your exceptional child bring glory to God. You all have my heart.
Heart breaking news. Praying for comfort and peace for Avery and her family and friends. God is holding you in the palm of His hands.