Monday, September 7th
Avery battled stomach cramps most of the night. She slept, but she did not rest well. As soon as she woke this morning, she vomited. Luckily, she didn't lose her tube and seemed to feel much better after that. We decided to add Aloxi to her regimen to help with the continued nausea.
Her platelets were 41, so we started the day with a platelet transfusion at 3:30 am. Her Hemoglobin took a nice jump from yesterday's blood transfusion, so no blood was needed today. Her ANC dropped back down to 0, but she has remained fever free. Her blood cultures finally resulted in a bacteria type of Pseudomonas aeruginosa. They switched her back to the antibiotic Cefepime. Since her line isn't being constantly used, they have also switched to a Gentamicin(antibiotic) lock instead of heparin. This will hopefully help kill any lingering bacteria in her line.
Overall, she had a decent day. She worked on a new Lego set and watched some TV most of the day. She even ate one bite of a donut.

She started feeling nauseous around 5:30pm, so they gave her a dose of Benadryl to help. She fell asleep and slept until a little after 9pm. I was glad she was able to catch up on some much needed rest.
Her stomach troubles are the biggest issue impacting how she feels right now. She isn't able to sleep soundly due to cramping and having to get up to go to the bathroom. Her poor bottom is very raw. We are using barrier wipes, creams, and even rinsing off in the shower to try and help, but she's still in pain. We are hoping that tomorrow will provide a little more relief.
Please continue to pray for:
- No fevers
- Relief from stomach issues
- Rest
- ANC to begin to rise
Such a sweet girl! Praying for no fevers, ANC to rise and rest!
One bite of a doughnut may lead to a whole one later! God bless the sweet girl! Cramps and vomiting are no fun for anyone. I pray for all on your list and for Avery to wake tomorrow feeling more herself. Try to get some rest, Mom!
Praying for Sweet Avery.
Praying for her every need🙏
God bless this sweet baby! God please bless her with a restful night with no fevers, no stomach issues, and for her ANC to begin to rise. Bless her precious mom with rest as well. We are believing and thanking God for hearing and answering prayers for this angel.&