Transplant Day +19

Wednesday, February 12th

Avery had another poor night of rest. She fought the pulse ox monitor and would only give in if I was the one to put it on her finger. This meant we were up at 12:30, 2:30, 4:30, 4:45, 5:00, and again at 6am. She had to get a platelet transfusion at 4:30am so they had to do extra vitals during and after the transfusion.

Her ANC was 1270 today. They got rid of her morphine drip and changed her Acyclovir and Zofran from IV to NG(PO). They cut her TPN in half with the expectation that she would increase feeds. She handled her feeds at 20mL/hour until about 9:45 this morning. Then she vomited up everything in her stomach including her NG tube(again!). We waited until almost noon to replace it and started her feeds back at 10mL. We increased back to 20mL about 5:30 and will start trying to increase by 10mL every 12 hours tomorrow.

She finally fell asleep for a nap about 4:30pm. She was extremely restless and agitated. This could be due to the morphine. She was easily upset and very clingy tonight. She's also been complaining of some stomach cramping as well.

Tentatively, they think we may get to go home early to mid next week. They are trying to get her next MRI scheduled(possibly before we are discharged), and they will have to schedule getting her central line removed as well. They will start our discharge teaching soon to prepare for when we are home. Her immune system is much more compromised than with previous rounds of chemo, so they are different precautions we will have to take.

Please continue to pray for:

- No more vomiting

- Tolerate nutrition and medicines

- No new complications

- Rest