Thursday, February 13th
Last night was a terrible night. Shortly after 11PM, Avery awoke vomiting. She vomited 200mL(pretty much everything she had taken in since her tube was replaced) and lost her tube again. She got settled back into bed, but she had a difficult time falling back to sleep. Around midnight, she started having bad stomach pains. They ordered her another dose of Benadryl which seemed to help for about 2 hrs. Then she work up again will stomach pains and begging for medicine. They gave her a small dose of morphine which helped her settle back to sleep. She woke again at 4am during labs, vitals, and cap changes inconsolable and fighting. I had to restrain her long enough for the nurse to finish what she needed to do. Thankfully after that, Avery slept until about 9:30am.
Her ANC was 960 today, so she needed another dose of Neupogen. She didn't need any transfusions. She got a small dose of maintenance fluids to replace what she had lost being without her tube overnight. The biggest item to discuss during rounds was how to get her to tolerate feeds/medicines.
They decided on a TP(Transpyloric)/ND(Nasoduodenal) feeding tube. Similar to a NG tube, an ND tube is inserted through the nostril, down the esophagus, and into the stomach. The NG tube stays in the stomach, while the ND tube is advanced past the pylorus into the small intestine. They took us down to radiology around 2pm to get it placed. It was probably the most traumatic thing we have put Avery through so far just because it was much more time consuming than a normal NG insertion. 4 of us held her down on the x-ray table while the tube was inserted. They took an x-ray when it was in the stomach, and then again once it was in the small intestine. After placement was confirmed, they pulled out the guide wire and finish securing the tube to her face. She was awake for the entire procedure. They started her feeds back an 10mL an hour and will leave them at this rate the rest of the day. The new tube should hopefully help alleviate the issues she has been having because:
No feeds or meds will go into her stomach which should remove the majority of the triggers for vomiting
The tube is placed much deeper therefore it should be more difficult to come back out while vomiting
She took a much needed nap early this evening. She perked up a little bit after bath enough to address some Valentines to hand out to her nurses tomorrow.
Please continue to pray for:
- No more vomiting
- Tolerate nutrition and medicines
- No new complications
- Rest
Praying for this sweet child.
Lori Beth,
If she needs a platelet donor I am a universal donor with the antibodies that the Redcross requires. They have asked me to do this before. I am willing to do this for Avery. Just let me know. I am Debbie Waters. Your dad and the Conns know us and our family well. God bless you all.
Please God heal this precious child, I as it in Jesus precious name!
Sweet, precious Avery, covering you in prayers of agreement for a quiet tummy, that your body will accept and respond positively the meds and nutrients. Also agreeing that you will have sweet, restful days and nights, with no pain or discomfort. Agreeing that the corner is turned and no more complications will arise. Covering the doctors, nurses and medical assistants who are attending you...that they are given the wisdom for the right decisions for your treatment. Praying for your Mother who is relentless in her faith and courage and love for you...for her to be strengthened through the Holy Spirit. Through the agreement for healing, that Mom will have peace, test and relief. In Jesus' holy name ... Amen.