Wednesday, February 19th
Avery rested well last night. She was up by 7 this morning and a little grumpier than usual. Morning meds through her NG tube were a big fight, and I had to restrain her hands and feet to keep them from hitting and pulling. It took some time, but she finally snapped out of it and was back to her normal silly self.
Her ANC had dropped to 560, so she received a dose of Neupogen. Typically this far from transplant they don't see quite the fluctuation she is having. If it continues into next week, they may decide to give her a stem cell boost. This could be done in clinic, so we wouldn't have to be inpatient for it to happen. Everything else looked good, and no transfusions were needed today.
We increased her feeds to 15mL per hour. They originally planned to go up to 20mL, but due to a schedule change, we will be here until early next week, so there is no reason to rush and risk causing her to get sick. She has tolerated everything so far with little to no complaints of stomach pain.
There were no slots available for MRIs on Friday, so they are trying to get her worked in for Monday. Since we will be here through at least Monday, there was no reason to remove her central line tomorrow as planned, so that has been pushed to Monday as well. Hopefully, we should be on our way home early next week pending no new complications.
Please continue to pray for:
- Tolerate nutrition and medicines
- Clean scans
- Rest
Love the beautiful picture Avery! You are an amazing girl! I am so thankful and happy you will be going home soon. I am praying that you will have another restful night. I also pray for your mom to get some rest too!
Love the picture you drew. Praying for clean scans a toleration of food and meds and rest! 💕💕💕💕
Sounds like more positive results. Love her picture. Continued prayers for complete healing and clean scans, rest for Avery and parents and grandparents. Also, tolerate nutrition and meds. Love this family.💗