Saturday, February 22nd
Avery had a decent night last night. She woke up a couple of times with stomach pain, but we paused her feeds and that seemed to settle it.
Her ANC was 850 this morning so she required a dose of Neupogen. Her other counts were good, so no transfusions were needed.
We increased her feeds to 40mL/hr around noon today. She continues to tolerate them well. We will increase to 45mL at midnight.
Avery was disappointed this morning when she woke up and learned that we hadn't given her morning meds while she was asleep. We decided to try a different approach today where I would give her the meds. She objected a little on the the first one, but she pushed the 2nd and 3rd (plus the flush) by herself. It went much smoother than normal, so we will try this method again tomorrow. Luckily we were able to sneak in her 2nd doses once she fell asleep tonight.
She had her last(hopefully) central line dressing change today. I wasn't there for it, but Shon said she did better than usual. There was still crying and screaming, but she held relatively still. Luckily her skin around the dressing has healed nicely so she didn't require the Mepilex foam dressing anymore.
She had a big day of playing and managed to get in a good afternoon nap. She continues to do well with mouth care, vitals, and daily baths. She is counting the days until we go home(hopefully 3)!
Please continue to pray for:
- Tolerate nutrition and medicines
- Clean scans
- Rest
Awesome job sweet girl!! I know your all ready to be under the same roof, almost there!!!
Praying for continues healing!
Sending prayers and love to Avery! Love her sweet smile!
You are counting the days when you all get to go home and I am praying for that for all of you! I am so thankful for every good report you have received and pray that the days ahead will be filled with JOY and happy times together as a family! Praying Avery will continue to tolerate her nutrition and meds and that all scans will be clear. God please grant a restful night for all of this sweet family! Praying and believing God will grant this child a miracle of complete healing!
Great news!! Prayers for all her needs and complete healing. Love her picture. Prayers to get to go home soon. 🙏🙏🙏