Monday, January 27th
Avery had another restless night. Her platelets finished up around 11pm. Her midnight lab work showed that she also needed blood, so they gave her a transfusion overnight. She spiked a fever of 100.4 in the middle of the night. She managed to make it through the night without vomiting, but she woke up at 5:30am sick.
Her ANC is still hanging in there at 10. The rest of her labs looked good. They started her back on the IV Vancomycin since she spiked a fever again. They increased her Benadryl/Ativan drip to .9 due to her continuing nausea. They also started her on a continuous morphine drip to try and better control her pain. She is supposed to have continuous pulse ox monitoring while on the morphine drip, but she won't keep it on. They are now checking it hourly. Her mid-day labs showed that her platelets had dropped once again below her threshold, so she had to have another platelet transfusion this afternoon.
Overall, she has felt terrible today. She normally screams and cries when she is upset(at the hospital), but she rarely sheds any tears. Today(before they started the morphine) she had big tears rolling down her cheeks. It absolutely breaks your heart seeing her in so much pain and not being able to do anything about it. She has stayed in her hospital bed all day with the exception of trips to the bathroom. She normally spends her days on the couch, so we know she really feels bad. Even with all of the medicines, she vomited a total of 6 times, and spiked a 102 fever tonight.
Please continue to pray for:
- No more vomiting
- No more fevers
- Pain management
- Rest
Our heart just breaks for this precious little girl, Avery, Lori Beth, and the medical team. Prayers for no vomiting, no fever, no pain, rest, comfort, and continuing healing. Please, God, hear our prayer. Complete Healing and Quickly, Lord!!!!!
Praying for strength and healing. 💕
Breaks our hearts, also❣️ Praying for healing, comfort, strength, encouragement, guidance and God’s love surrounding all of you♥️❣️
I wish so much that I had words that would help sooth little Avery & that could help your family’s pain, but I don’t. What I do know is that Jesus does. He has the Words & power to sooth & comfort & I'm asking Him to provide that for all of you.🙏🏻 You are so loved!♥️
Since I have come to know this sweet girl through keeping up with her mom’s posts each day I have grown to love her and admire her strength . I was her Dad’s Kindergarten teacher so in this way I do know her family. Avery is such a beautiful, brave little girl. My heart breaks for her and the entire family. Many messages I send are covered with tears. I can’t begin to imagine the pain you all are experiencing. Please know there is never a day that I don’t ask God to please grant her a miracle of complete healing. May God grant all of you a restful night.