Friday, September 11th Avery's pain was better managed last night, but she was still in a good deal of pain. The pain has her senses...

Thursday, September 10th Avery's pain continued to progress through the night. By 10:45 last night, her 9:30 dose of pain medicine...

Wednesday, September 9th It was a long tough night followed by a long tough day. Shortly after Avery fell asleep last night, she woke up...

Tuesday, September 8th Last night seemed like a very long night. Avery was restless and cried out and whimpered all night with stomach...

Monday, September 7th Avery battled stomach cramps most of the night. She slept, but she did not rest well. As soon as she woke this...

Sunday, September 6th Avery had a slightly better night last night. She still battled with stomach cramps and diarrhea, but we were only...

Saturday, September 5th Avery remained fever free through the night on Friday. She woke up at 1am this morning drenched in sweat though....

Friday, September 4th Avery had a better night Thursday night. She didn't get sick any and only woke briefly during vitals and to go to...

Thursday, September 3rd We all got to enjoy being home together for a day and a half before landing back in the hospital. Avery didn't...

Tuesday, September 1st Avery rested better last night. She was still up quite a bit and fussed during vitals, but she didn't get sick...

Monday, August 31st Avery was resting well until it was time for her 12am sodium supplement. Immediately after they pushed it through...

Sunday, August 30th Saturday night proved to be another rough one. Shortly after Avery fell asleep, she was hit with diarrhea(a common...

Saturday, August 29th No one was happy about starting our day going to CT at 4am, but we got it done and got back to sleep as quickly as...

Friday, August 28th It never fails that after I post my nightly update, things start to go south. Avery got settled to sleep fairly...

Thursday, August 27th Avery had another restless night last night. She woke with a headache that we battled all night. Two doses of...

Wednesday, August 26th Avery had an OK night in the PICU. It wasn't restful at all, but she was stable and not in any pain. They had...

Tuesday, August 25th Shortly before midnight Monday night, Avery started to feel nauseous. They gave her a dose of Benadryl which seemed...

August 24th We started the day with an eye appointment at Children's South. Avery did great with the exam, vision test and getting her...

Friday, August 21st It has been a difficult past 24 hrs trying to process all that has been thrown at us. Avery has Leptomeningeal...

Thursday, August 20th I thought we had lived through the worst day of our lives....until today happened. We didn't get the news we had...