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 #brAVERY

Let her sleep..for when she wakes she will move mountains

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Happy 7th Birthday Avery!

Wednesday, November 4th Dear Avery, Today, you are 7! We've been counting down the days until your birthday for over a month now. Seven...

Week 1 - Radiation

Friday, October 30th We've been home from the hospital for nearly a week and had a fully packed schedule. Avery has struggled with...

Home

Saturday, October 24th All of Avery’s numbers looked good today. She didn’t require any transfusions, and her ANC was up to 1600. She...

Uneventful Day

Friday, October 23rd An uneventful day in the hospital is always a good day! Last night was not the most restful, but we made it through....

Next Phase of Treatment

Thursday, October 22nd Avery was more restless last night than she has been. She got up 3 or 4 times throughout the night. We capped...

Anesthesia Simulation

Wednesday, October 21st Avery had another restful night. She got up once and stirred some during vitals, but mostly slept well. She...

Scan Day

Tuesday, October 20th Praise God! Avery's MRIs showed reduction in tumor/disease in both her brain and spine. The team was very happy...

Count Recovery Day 10

Monday, October 19th Avery continues to improve each day. Sunday night she slept so well. She didn't even wake once during vitals. Her...

Count Recovery Day 9

Sunday, October 18th Avery was finally able to rest on Saturday night. She only got up once and required one extra dose of pain medicine....

Count Recovery Day 8

Saturday, October 17th Friday night was quite possibly the worst night we have ever experienced. Avery started hurting at 9, so we gave...

Count Recovery Day 7

Friday, October 16th Avery rested better Thursday night, and her pain was better controlled. She only needed one or two prn doses of...

Count Recovery Day 6

Thursday, October 15th Wednesday night was the worst night for Avery. Despite getting oxy every 4 hours with morphine in between each...

Count Recovery Day 5

Wednesday, October 14th It was another long night for Avery. She finally fell asleep around 11:45pm, only to wake up in pain again at...

Count Recovery Day 4

Tuesday, October 13th It was another rough night. Avery woke up around 1:30 am in excruciating pain. She wasn't able to have pain...

Count Recovery Day 3

Monday, October 12th Avery still struggled with stomach pains last night, but she was able to rest a little bit. She continued to run...

Count Recovery Day 2

Sunday, October 11th Avery was able to sleep the first couple of hours of the night before waking in pain. She continued to run a fever...

Count Recovery Day 1

Saturday, October 10th Thankfully we pushed to be discharged on Saturday instead of Friday, because, as expected, Avery spiked a fever...

Stem Cell Boost

Friday, October 9th Avery slept fairly well last night. She got up twice to use the restroom, but otherwise slept. Her platelets were 36...

Relapse Cycle 2 - Day 9

Thursday, October 8th Avery slept well last night except for a mishap with her g-tube that required a pajama change at 4:30 this morning....

Relapse Cycle 2 - Day 8

Wednesday, October 7th Avery only woke a couple of times in the night to go to the bathroom. Otherwise, she slept well and slept through...

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About Us

Our Story

In August 2019, we received some news that no parent ever wants to hear - your daughter has a brain tumor.  This blog is to document Avery's journey for our family and friends to follow along.   Most importantly, though, when Avery is grown, I want her to be able to understand what a fighter she is and to know how very much she is loved!

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