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 #brAVERY

Let her sleep..for when she wakes she will move mountains

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Transplant Day +10

Monday, February 3rd Avery's ANC was 720 this morning! This is her first day of engraftment, although they won't technically considered...

Transplant Day +9

Sunday, February 2nd Avery struggled with pain and fevers throughout the night causing her to not rest well at all. Her weight was down...

Transplant Day +8

Saturday, February 1st Avery had a slightly better night last night. She seemed to be able to rest a little more than previous nights. ...

Transplant Day +7

Friday, January 31st Last night was a long night. Avery was still in a lot of pain. She vomitted once and was screaming in pain in...

Transplant Day +6

Thursday, January 30th Avery is still fighting an uphill battle in regards to pain management today. They upped her morphine drip this...

Transplant Day +5

Wednesday, January 29th Avery had a tough night last night. She continued to struggle with pain and kept spiking fevers. At 2am she had...

Transplant Day +4

Tuesday, January 28th Avery continued to spike fevers throughout the night. She was restless from pain and hourly pulse ox checks. She...

Transplant Day +3

Monday, January 27th Avery had another restless night. Her platelets finished up around 11pm. Her midnight lab work showed that she...

Transplant Day +2

Sunday, January 26th Avery was restless and cried out a lot last night, but she managed not to vomit any overnight. She did wake up at...

Transplant Day +1

Saturday, January 25th Avery's day started out rough waking up vomiting at 2:30am and 6:30am. Despite increasing her Benadryl/Ativan...

Transplant Day!

Friday, January 24th Avery slept well again last night with no nausea or diarrhea overnight. She required a platelet transfusion , but...

Transplant Day -1

Thursday, January 23rd Avery had a much better night last night. She slept a solid 13 hours, not waking up until after 10am this...

Transplant Day -2

Wednesday, January 22nd Last night was another restless night. Avery fell asleep right after her 10pm bath, but I had to get her up at...

Transplant Day -3

Tuesday, January 21st Avery had a slightly better night last night. She did not vomit anymore and fell asleep quickly. She began having...

Transplant Day -4

Monday, January 20th Avery had a rough night last night. Shortly after midnight, she spiked a temp of 100.5. They drew blood cultures...

Transplant Day -5

Sunday, January 19th Avery had another good night and slept soundly. She didn't wake up until close to 11:30 am. Overall she felt...

Transplant Day -6

Saturday, January 18th Avery slept soundly through the night and woke around 9am this morning. She had another good day with no sickness...

Transplant Day -7

Friday, January 17th Overall , Avery had a pretty good night. She had one episode during midnight vitals where she got extremely upset...

Transplant Day -8

Thursday, January 16th Avery slept well last night and rested until we had to get her out of bed at 8am for her twice a day weigh in. ...

Admission to BMT

Wednesday, January 15th It was an early start to our next round of treatment and admission to the BMT Unit. We were out the door at 4:45...

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About Us

Our Story

In August 2019, we received some news that no parent ever wants to hear - your daughter has a brain tumor.  This blog is to document Avery's journey for our family and friends to follow along.   Most importantly, though, when Avery is grown, I want her to be able to understand what a fighter she is and to know how very much she is loved!

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