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 #brAVERY

Let her sleep..for when she wakes she will move mountains

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Clear Scans!

Friday, January 10th All of Avery's testing and procedures for the week are complete. Her CT scans on Wednesday were clear showing no...

Prepping to go to Transplant

Tuesday, January 7th Avery had a full day today as she prepares to move to Transplant next week. They were unable to schedule her ...

We have stem cells!

Friday, January 3rd Avery was admitted around noon on January 1st in preparation for stem cell collection. Most of the day was spent...

2019 Recap

Tuesday, December 31, 2019 I am not normally one to overly reflect as the year comes to an end, but this year I have had a lot more time...

Next Phase & Tentative Schedule

Thursday, December 19th Due to Avery's fever from the blood/platelets last week, they decided to keep us all day Friday to watch for more...

Scanxiety

Thursday, December 12th We have been both anxiously awaiting and dreading this day since the beginning of treatment. We were mentally...

Next Steps

Tuesday, December 10th We have enjoyed being home the past week! Avery has felt pretty good despite some nausea and stomach issues. She...

Day 28 - Finally home

Tuesday, December 3rd Avery didn’t rest very well last night but was still ready to take on a big day! No blood or platelets were needed....

Day 27

Monday, December 2nd Avery got caught up on some much needed rest today. She woke up at 7am to play for a while, but then she napped...

Day 26

Sunday, December 1st Avery continues to take positive steps forward in her recovery this cycle. Her Potassium and Phos levels were on...

Day 25

Saturday, November 30th Avery continues to improve daily. She still remains fever free. Her electrolyte levels are holding steady. She...

Day 24

Friday, November 29th Avery had another good day today. We are hoping we are over the worst of his cycle. Her labs were borderline this...

Day 23 - Happy Thanksgiving

Thursday, November 28th Avery was a little more restless during the night waking each time the nurses came in for labs and vitals. She...

Day 22

Wednesday, November 27th Avery finally had a decent night of rest. Twenty minutes after giving her the Melatonin, she was out cold. She...

Day 21 - Cycle 3

Tuesday, November 26th Monday night/Tuesday morning continued to be rough on Avery. She battled stomach cramps, insomnia, and continued...

Day 20 - Cycle 3

Monday, November 25th Avery had a fairly restless night(Sunday) again. She is struggling to sleep and crying out and tossing and...

Day 19 - Cycle 3

Sunday, November 24th Avery had a rough early Sunday morning. She woke up right after midnight vitals and couldn't fall back to sleep...

Day 18 - Cycle 3

Saturday, November 23rd Avery had a tough night in regards to rest. She cried out a lot and seemed to be having bad dreams. She woke up...

Day 17 - Cycle 3

Friday, November 22nd Avery's crankiness from yesterday spilled into the night. She tossed and turned and cried out a good bit. She was...

Day 16 - Cycle 3

Thursday, November 21st It was a long night last night. Avery vomited shortly after midnight. They gave her some medicine to help the...

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About Us

Our Story

In August 2019, we received some news that no parent ever wants to hear - your daughter has a brain tumor.  This blog is to document Avery's journey for our family and friends to follow along.   Most importantly, though, when Avery is grown, I want her to be able to understand what a fighter she is and to know how very much she is loved!

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