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 #brAVERY

Let her sleep..for when she wakes she will move mountains

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1 Year Anniversary

Thursday, August 13th Today marks 1 year since Avery's brain tumor was discovered, and we were thrown into this world known as childhood...

Clinic Visit & Hearing Checkup

Thursday, June 24th Avery has done really well the past month. After her last scans, we cut off her NG feeds and substituted water...

3 Months Cancer Free!!!

Friday, May 22nd Avery woke up this morning just in time for a last sip of water before her cutoff of liquids. She got dressed and...

Tomorrow is scan day!

Thursday, May 21st Avery had her first clinic appointment since BMT yesterday. She did great, and it was probably her best port access...

3 Month Scans Scheduled

Monday, May 11th We have been loving life at home lately! Avery continues to thrive and get stronger everyday! She is enjoying getting...

Transplant Day +88

Tuesday, April 21st Avery has officially graduated(I guess that is what you would call it) from Transplant back to our primary...

Eight Months

Tuesday, April 14th It was exactly eight months ago yesterday that our lives were forever changed. The filter in which we had been...

Transplant Day +70

Friday, April 3rd We enjoyed a longer break between clinic appointments and have been taking advantage of this beautiful weather! Avery...

Transplant Day +62

Thursday, March 26th We are just a couple of days past 2 months post transplant, and tomorrow marks 4 weeks since we have been home from...

Transplant Day +54

Wednesday, March 18th There is not much new to report which is obviously good news. Avery had a good Clinic appointment yesterday. Her...

Transplant Day +50

Saturday, March 14th Avery continues to do well at home. Her nausea and stomach pains are becoming more intermittent. She’s still not...

Transplant Day +46

Tuesday, March 10th Avery had a clinic appointment this morning and did great! Her platelets were 89 and her ANC was 1350, so she didn't...

Transplant Day +41

Thursday, March 5th Avery continues to do well healing at home. She is still dealing with some stomach issues, but we are keeping those...

Lessons in Faith & Prayer

This is not my typical blog post. I am a pretty private person, therefore I like to keep the posts focused on the medical side of...

Transplant Day +38

Monday, March 2nd Avery has enjoyed being at home the past few days. She still tires very easily, but we know that will improve with...

Transplant Day +35 & Home

Friday, February 28th Avery didn’t sleep soundly last night, and a 4:30am platelet transfusion didn’t help matters. She tossed and...

Transplant Day +34

Thursday, February 27th Avery slept well again last night. Her Benadryl schedule got adjusted somehow, so she has been getting an 8am...

Transplant Day +33

Wednesday, February 26th Avery had a very restful night. She didn't wake during any vitals and slept until 10:15 this morning. Her ANC...

Transplant Day +32

Tuesday, February 25th Avery's day started out at 2:30am with a blood transfusion. The constant vitals required made for a few hours of...

Transplant Day +31

Monday, February 24th Avery had a long day which started with a platelet transfusion at 2am this morning. She was really restless with...

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About Us

Our Story

In August 2019, we received some news that no parent ever wants to hear - your daughter has a brain tumor.  This blog is to document Avery's journey for our family and friends to follow along.   Most importantly, though, when Avery is grown, I want her to be able to understand what a fighter she is and to know how very much she is loved!

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