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 #brAVERY

Let her sleep..for when she wakes she will move mountains

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Clinical Trial Update

Sunday, April 18th Avery's vision is her left eye continues to worsen. By Tuesday, the blurriness of her left eye had become more...

When it rains...

Monday, April 12th Avery has been experiencing worsening symptoms since our clinic visit last week. She began vomiting again on Friday,...

Clinic Update

Wednesday, April 7th We had a long day at clinic today. Avery did awesome getting her port accessed and labs drawn. Unfortunately, her...

Disease Progression

Monday, April 5th Unfortunately Avery's MRIs today showed disease progression. She has no new solid tumors, but she is still dealing...

Cycle 2 - Day 15

Wednesday, March 24th Despite the added steroids, Avery's nausea and vomiting continued to get worse following our last clinic visit. ...

Cycle 2 - Day 1

Wednesday, March 10th Avery has felt decent for the most part this past week. She has been able to enjoy some fun with her sisters...

Cycle 2 - Delayed

Wednesday, March 3rd Avery has felt pretty good the past 2 weeks. The new nausea meds and short steroid round kept most(but not all) of...

Cycle 1 - Day 15

Wednesday, February 17th Avery continued to deal with intermittent nausea and stomach cramping the past week, although her energy and...

Cycle 1 - Day 8

Wednesday, February 10th Avery has felt the effects of last week's chemo for the majority of the past week. She vomited the first 5 days...

Cycle 1 - Day 1

Wednesday, February 3rd Avery had a clinic appointment this morning. She did great getting her vitals and port accessed. She was so...

Still Recovering

Wednesday, January 27th Avery had a clinic visit today. She still didn’t make counts to begin her next round of chemo. Everything was...

Delayed

Wednesday, January 20th Avery did great job this morning getting accessed! All of her labs have improved since they were last checked...

Back to reality

Tuesday, January 19th Avery has continued to do very well since her MRIs. We went to clinic Wednesday, January 6th to check her counts. ...

Improved Scans

Monday, January 4th We made it to the hospital by 7:15 in preparation for scans this morning. We were taken back almost immediately and...

Stem Cell Boost #2

Wednesday. December 30th Avery received her second stem cell boost today and used the last of her frozen stem cells that were collected...

Finished with Radiation

Monday, December 14th Avery completed her 28th and final radiation session last Thursday! She got to ring the gong signifying the end of...

Radiation Homestretch

Saturday, December 5th Avery has now completed 25 out of 28 radiation sessions. Her plans were updated from the original to include 22...

Week 4 - Radiation

Sunday, November 22nd Avery has completed 17 radiation sessions and only has 13 more to go! She continues to do better than expected...

Week 3 - Radiation

12 radiation sessions down, and only 18 more to go! Avery is continuing to handle things like a champ! We leave the house at 5:55 am...

Week 2 - Radiation

Avery has now completed 7 radiation treatments with 23 remaining. She is tolerating it as well as can be expected. She's been able to...

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About Us

Our Story

In August 2019, we received some news that no parent ever wants to hear - your daughter has a brain tumor.  This blog is to document Avery's journey for our family and friends to follow along.   Most importantly, though, when Avery is grown, I want her to be able to understand what a fighter she is and to know how very much she is loved!

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