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 #brAVERY

Let her sleep..for when she wakes she will move mountains

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Transplant Day +30

Sunday, February 23rd Avery's day started out rough. As soon as she woke up, she started vomiting and lost her tube again. They waited...

Transplant Day +29

Saturday, February 22nd Avery had a decent night last night. She woke up a couple of times with stomach pain, but we paused her feeds...

Transplant Day +28

Friday, February 21st Avery had a good night. She was awake on and off between 5am and 6am while she was receiving platelets(due to the...

Transplant Day +27

Thursday, February 20th There are no real changes to report today. Avery's ANC got a big boost from the medicine yesterday and was 8540...

Transplant Day +26

Wednesday, February 19th Avery rested well last night. She was up by 7 this morning and a little grumpier than usual. Morning meds...

Transplant Day +25

Tuesday, February 18th Avery had a decent night last night. She had a little trouble sleeping but was only up a couple of times. She...

Transplant Day +24

Monday, February 17th Avery had another restful night. She slept soundly until about 8:30 this morning. Her ANC was up to 6200, so no...

Transplant Day +23

Sunday, February 16th Avery slept better last night than she has in weeks! She slept from 10:30pm to almost 9:30am and didn't wake for...

Transplant Day +22

Saturday, February 15th Avery had a better night but was still pretty restless during vitals. She required blood and platelet...

Transplant Day +21

Friday, February 14th Last night was another rough one. Avery tossed and turned and moaned with her stomach for the first part of the...

Transplant Day +20

Thursday, February 13th Last night was a terrible night. Shortly after 11PM, Avery awoke vomiting. She vomited 200mL(pretty much...

Transplant Day +19

Wednesday, February 12th Avery had another poor night of rest. She fought the pulse ox monitor and would only give in if I was the one...

Transplant Day +18

Tuesday, February 11th Avery was pretty restless last night. She got up twice to go to the bathroom and was very agitated during vitals....

Transplant Day +17

Monday, February 10th Avery rested soundly last night with the exception of a 4am bathroom trip and slept until after 9am this morning. ...

Transplant Day +16

Sunday, February 9th Shortly after falling asleep last night, Avery woke up vomiting. They gave her some Benadryl to help the nausea...

Transplant Day +15

Saturday, February 8th Avery rested a little better last night. She is still extremely on edge and easily agitated while she is asleep...

Transplant Day +14

Friday, February 7th Avery didn't rest well at all on Thursday night. It was after midnight when she fell asleep, and she woke up every...

Transplant Day +13

Thursday, February 6th Avery finally rested well last night. She slept solid until we had to wake her to get her weight at 8:30am this...

Transplant Day +12

Wednesday, February 5th Avery was still pretty restless last night. We had to get up around 3am due to diarrhea, but luckily she went...

Transplant Day +11

Tuesday, February 4th Avery has finally migrated from the "I feel so bad you can do anything to me" phase to the "I still feel bad but...

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About Us

Our Story

In August 2019, we received some news that no parent ever wants to hear - your daughter has a brain tumor.  This blog is to document Avery's journey for our family and friends to follow along.   Most importantly, though, when Avery is grown, I want her to be able to understand what a fighter she is and to know how very much she is loved!

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