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Let her sleep..for when she wakes she will move mountains

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Relapse Cycle 2 - Day 7

Tuesday, October 6th Avery slept well the entire night until she woke up at 5:30 am vomiting. After some Benadryl, she was able to go...

Relapse Cycle 2 - Day 6

Monday, October 5th Thankfully the nights continue to get a little bit better each night. We stayed up later last night and were able to...

Relapse Cycle 2 - Day 5

Sunday, October 4th Avery had an ok night of rest last night. She woke up angry during vitals once but settled back down fairly quickly....

Relapse Cycle 2 - Day 4

Saturday, October 3rd Avery was able to rest a little bit better on Friday night. She woke up once during vitals, but otherwise did...

Relapse Cycle 2 - Day 3

Friday, October 2nd Early Friday morning was a struggle with little to no rest. We made it to Special Care and got settled in between...

Relapse Cycle 2 - Day 2

Thursday, October 1st Avery had a good night Wednesday night and slept as well as you can in the hospital. She awoke in a good mood and...

Relapse Cycle 2 - Day 1

Wednesday, September 30th We arrived at Clinic bright and early this morning. Avery once again did perfectly with vitals and getting her...

Clinic Update

Monday, September 28th Avery felt good over the weekend and was even able to play outside some. She is still very weak so her legs can't...

Delayed Again

Friday, September 25th Avery's stomach issues finally seem to have subsided, and she has slept well the past couple of nights. She has...

Delayed

Wednesday, September 23rd Avery had a better night of rest Tuesday. She only woke with stomach pain once, and I was able to "vent" her...

Update from Home

Tuesday, September 22nd Avery has battled stomach cramps and nausea/vomiting since we made it home. It has made for some long sleepless...

Home Sweet Home

Sunday, September 20th Avery had another restful night last night. I like to credit it to one of our favorite and sweetest night nurses...

Post-op Day 2

Saturday, September 19th Avery had a much better night last night. She received one dose of pain medicine overnight, but didn't need...

Post-op Day 1

Friday, September 18th Thursday night was rough as expected. Avery was in a lot pain, and the morphine every 2 hours was still not...

G-tube Day

Thursday, September 17th Today was a tough day. Avery and I were both restless last night. Her platelets dropped to 46 which led to a...

Neutropenic Day 14

Wednesday, September 16th After Avery got done fussing with the way the IV Benadryl smelled(go figure) last night, she fell asleep. She...

Neutropenic Day 13

Tuesday, September 15th Avery woke shortly before midnight crying out in pain. It was time for her scheduled pain medicine, so she...

Neutropenic Day 12

Monday, September 14th Avery was in a little bit more pain right before bedtime last night. They gave her a dose of meds for...

Neutropenic Day 11

Sunday, September 13th Avery's long nap yesterday made it difficult for her to fall asleep last night. She finally fell asleep around...

Neutropenic Day 10

Saturday, September 12th Avery's pain continued to worsen last night. They changed her scheduled pain meds to every 3 hours which seemed...

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About Us

Our Story

In August 2019, we received some news that no parent ever wants to hear - your daughter has a brain tumor.  This blog is to document Avery's journey for our family and friends to follow along.   Most importantly, though, when Avery is grown, I want her to be able to understand what a fighter she is and to know how very much she is loved!

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